AIDS & Starcross

The Starcross FamilyIn 1986 we had never heard of AIDS.  By 1987 Starcross was frequently cited on national (and international) TV as a leader in the care of children with AIDS.  How did that happen?  We simply responded to the plight of infected babies being abandoned in hospitals by offering them a loving home.

We had no medical training but we did know how to take care of kids, having raised many foster children over the years.  At the time medicine had nothing to offer.  The local AIDS doctor encouraged us saying that these little children whose mothers were too sick to care for them, needed to be in regular homes, not hospitals.  We joyfully welcomed six HIV positive babies into our family.  We turned out to be among the first to do this.  A media frenzy ensued.

Children at StarcrossHere’s a Press Democrat newspaper story of one special child who profoundly changed our lives.  “Tina DeRossi’s Legacy of Love”

Christina “Tina” DeRossi died this week, after a too-short life that was filled with too much pain. Yet despite dying a month shy of her third birthday, despite suffering from AIDS, Tina was a very lucky little girl.

Tina died at home – the Starcross Community near Annapolis – surrounded by a loving family. Had Tina been born three years before she was, she would not have had such a home. At that point in the AIDS epidemic, few saw the point in trying to place children like Tina in an adoptive home. AIDS kills, and these children had AIDS. Who would want to adopt a child who was dying?

Children like Tina helped to change those attitudes. Tina showed that children live with AIDS, not just die from it. Like all children, they laugh and sing and romp and cuddle. They get sick, they can get terribly sick, but like all children they bounce back fast.

As knowledge of AIDS has grown, so has awareness. More women who have AIDS, as Tina’s birthmother did, make provisions for their children’s care. Just two days after she was born, Tina came home to Starcross with her adoptive mother, Sister Julie.

Children like Tina have changed the adoption bureaucracy.  Despite the positive strides, too many children still die in institutions. Tina died in the old farmhouse that was her home.

Other children should be so lucky. Because of Tina they will be.

Copyright © 1991 The Press Democrat. All rights reserved.

Thoughts From One of Our Early Helpers Emily

22 years ago I was working on a Christmas tree farm and caring for children with HIV and AIDS. It was a busy and somewhat magical time of year. By day I made wreaths and prepared trees for shipping all over the US, I cooked meals, I dressed little giggling bodies, I pushed the swings, I kissed the boo boos, and we sang at the top of our lungs all day long. Late at night, after the house was quiet with sleep, the small cries from the chronic pain of AIDS and the weeping wounds of never-ending-shingles would tip toe down the hall and wake me. When it was my night to care for her, I would walk down the hall and pull a wide awake, sweet, two year old from her crib where she slept- right next to her mommy -and take her down to the quiet of the living room – 3am, 4am, 5am we would rock and I would sing her favorites, softly, so as not to wake the others. During those hours of singing Rainbow Connection over and over —-my heart was changed. I left northern California with passion for supporting people living with HIV and AIDS. I made the decision to study pediatric and maternal HIV and became a pediatric nurse practitioner and a midwife. This is what I do. Those sweet soul filled hours in the drafty night air with a feverish child resting on my heart, changed the face of HIV for so many families- so many children- so many youth. Because of those days and nights in 1990 and 1991, I get the privilege of being a part of intimate, awe inspiring, heart wrenching, celebratory, and ever so precious moments in the lives of so many people living with HIV all over the world. I * am * so * blessed. Here’s to you Tina, Michelle, Holly, Nicky, David, Veronica, Zach, Sean, Aaron, and too-too-too many others. You are remembered. You made a difference. The world is a better place because of you. World AIDS day – it’s not over folks- the changes have been miraculous since 1990, but there is a long road ahead. 

“Who said that every wish would be heard and answered, when wished on the morning star? Somebody thought of that and someone believed it. Look what it’s done so far. What’s so amazing that keeps us star gazing and what do we think we might see?
Someday we’ll find it, the rainbow connection.
The lovers, the dreamers and me.”

Romania

aids-brother_toby_w-baby In December 1989 the communist regime was violently overthrown in Romania. Immediately came out unbelievable stories of over 120,000 abandoned children left to die of starvation and neglect in sub-human conditions.  Most of them had AIDS because of the practice of reusing needles for injections.  ABC News asked Brother Toby to come with them.  Four segments on PrimeTime Live filming Brother Toby’s activities averaged 17 million viewers each. This helped turn a spotlight on the situation.

Starcross opened “Casa Speranta” (House of Hope) in Constanta, Romania in Jan. 1991.  American volunteers caredaids-romania in the wards for the children in family-style homes.   The Romanian doctor reported that despite having no HIV/AIDS drugs at the time, the children thrived.  All that changed was the way the children were cared for.  They were allowed to live like normal children in a family rather than as sick orphans in a hospital.  Dr. Matusa said, “Living near these children made me realize that AIDS is not synonymous with death. These children did not have to live without hope.”  Before long a Montessori preschool was set up at Casa Speranta.

Casa Speranta is now a Romanian nonprofit corporation with Romanian staff.

Uganda

In 1998 sub-Saharan Africa had the highest rate of HIV infection in the world.  Without access to medications adults succumbed quickly.  In some areas a whole generation would be wiped out leaving only elderly grandparents to care for many children.

Starcross Kin Worldwide (Click Here to learn more) set up sponsorships to provide basic necessities and school fees for destitute AIDS orphans in Uganda where most grandparents were peasant farmers living in poverty.  Soon we established a “House of Hope” where the children could live after their grandparents died.  Over 150 children have come through the program and been educated.  These young adults are teachers, artists, mechanics, journalists, nurses, computer scientists, university lecturers, accountants, software engineers, tailors, cooks and even a sign-language interpreter. Two graduates have recently become doctors: Matthew Ssengendo (who came to House of Hope when he was 8 years old) and Ivan Kabanda (who came to House of Hope when he was 6 years old). We are very proud of them and all the House of Hope graduates.

Starcross Kin Worldwide is now a Ugandan non-profit corporation run by graduates of the House of Hope. To visit the Starcross Kin Worldwide website and learn more, click here.

Sister Marti playing with AIDS children.

The San Francisco filmmaker Bob Elfstrom followed our lives for two years. The film, “Christmas at Starcross” was first shown by Boston PBS station WGBH in 1989. It is distributed by Villon Media. A copy can be ordered from us. If you would like to purchase the DVD, please call 1-800-960-1500 or email community@starcross.org.

Brother Toby with AIDS child

Read on: Tina Caring Association >>